About Elliot & the Op

Before we tell you about Elliot, here's the important link for the Operation Elliot Just Giving site.

Elliot is a six year old little boy with cerebral palsy and severe Haemophilia A.

He's just like any other six year old in many ways - he wants to be a pilot at the moment but the next best thing would be to be a pirate. Having cerebral palsy means that he can't do all the things his friends and siblings do and he gets understandably frustrated as a result.

He has recently been assessed by a specialist team at Great Ormond Street Hospital and is considered to be a strong candidate for a potentially life changing operation called a Selective Dorsal Rhizotomy. This is a huge spinal procedure which aims to give him much more freedom of movement. In order to be in the best possible position to get the benefits he has already started an intensive program of 'prehab' with a physiotherapist.

We're hoping that we'll have enough funds to go ahead with the operation sometime mid 2014 but it's no small undertaking. Currently Elliot is doing preparatory physiotherapy at a cost of £6,300. The operation will cost £30,000 and after 4 weeks in hospital Elliot will come home to a physiotherapy rehab programme lasting two years and costing another £30,000.

Why is the funding needed?
Great Ormond Street Hospital is considering Elliot for the SDR Operation. If they confirm that Elliot is a suitable candidate by Christmas, it will happen mid 2014. Great Ormond Street can carry out the operation but the NHS cannot pay for it under current guidelines. Many people are campaigning to change this, but it is very unlikely that this would be in time to make a difference for Elliot.

Elliot's friends and family have already started fundraising but we can't reach the target of £66,300. without extra help.

We need your help!
We know there's a lot of work ahead but it's all going to be worth it so let Elliot know you're right behind him -  please donate now or get involved by organising your own fundraising event.

Finally, if for any reason the operation cannot go ahead, getting support from Tree of Hope now means that the donations would be able to help another child in a similar position.  We are really pleased about this.  All signs from Great Ormond Street are good though, they are very impressed with Elliot's physio progress.

1 comment:

  1. Dear My Brother Elliot,
    Have a good operation nowadays because you're in operation and having a medical treatment. I know this won't be an illness even you had an operation timidly and on and on but please do not become depressive in case you hurt from any medical tools. I know you shall pass it on the planned time without any disintegration towards your life and on the contrary, become healthier, and in the exotics whichever you wish...